Co-founder of EndoActive Australia & NZ. Mum and I started EndoActive in 2014 to address the need for information and awareness of Endometriosis. So many people struggling with Endo were crying out for help – desperate to be heard, believed, understood, validated and better informed. To reach those people and at least make them feel like they’re not alone has become my passion.
I graduated from UTS in 2015
Bachelor of Communications – Social Inquiry & Sub-major in Media Studies
Back then I looked like this
Now I look like this:
I am currently studying Masters of Health Communication at University of Sydney
Licking the lid of life whenever possible.
I’m a 25 year old gal living in Sydney. In June 2012 I was diagnosed with Stage 4 Endometriosis and while this disease in no way defines me, it’s what has propelled me to start writing about some of my experiences in the hopes that it may help others, raise awareness, provoke community action, activism and advocacy and perhaps be therapeutic for myself.
I started this blog because no matter how hard I Googled, I couldn’t find any other Australian girls like me blogging about their experiences with Endo or Egg Freezing. While I’m sure they exist, I simply couldn’t find them organically in my searches and it was driving me mad. I was having a really tough time, I had no idea if my experiences were normal or not and I was desperate to compare notes. The blog aspect was important to me because I found the online support and discussion groups to be overwhelming, information overload, often quite negative and lacking the path of one person’s story.
I’ve always loved journaling and have a storage box full of diaries but there they are privately tucked away and stored under lock and key. I needed to read someone’s story. I needed some help and some validation. If I couldn’t find the story I was looking for, I’d have to start my own. Surely there must be others doing the same thing but where are they and why can’t I find them? This still frustrates me. How many girls just like me are also Googling ‘Endo Blog’ or ‘Egg freezing Blog’ and finding nothing? I figured if one person could find this page and feel a little less confused and alone then that would be a really good thing.
I strongly believe that as a community, we should be openly discussing the things that really need taking about so nobody feels alone and no subject is classified as secretive or taboo. On this blog I write as honestly and candidly as I can about the things I think and feel and just be me.
I encourage you to leave comments and share information – not just for me but also to help others who may be searching for answers and solidarity. Also, if there’s anything you’d like me to blog about I’d be happy to do it!
x x Syl