At 4pm after a long day of technical difficulties, ‘Hurricane Suze’ (or hormotional Syl) began to brew. I know myself well enough to know that despite said technical difficulties, they were not stressful enough to warrant the torrent of physical and emotional symptoms that began to take over me.
Today is the day I come off the pill. BIT SCARY! I’ve been on various kinds of OC pills since I was 15 and in the last two years I’ve been taking it continuously every day as per advice from my surgeon to prevent me having periods and try to slow down the growth of the Endo. I’ve never quite understood how the pill can slow down the growth of Endo when it contains oestrogen, which feeds Endo…
Thought I would take a photo of the party bag of drugs (good drugs) that I’m taking every day right now (at great expense) just to give a glimpse of what my daily routine has turned into…
Today I had my 3rd appointment with my lovely naturopath (although it was over the phone because I was so completely immersed in the overwhelming responses, messages and signatures flowing in every second since our petition on change.org/bayer went live a few days ago that I completely forgot about it!). I began seeing my naturopath (first appointment July 14th) on the recommendation of my fertility doctor – Dr A. She has put me on a bunch of supplements and stuff to help prep my body for ovarian stimulation and egg freezing and just load me up with as much good, natural, healthy stuff as possible.
The fish oil shot every morning is the worst part. And no I don’t mean fish oil tablets. I mean straight up fishy, oily, cold fish oil. Mixed with a shot of juice. Then down the hatch. BLEGH!! *stifles vomit*
Here we are at a family wedding just a few months ago. I love this photo. My daughter looks happy and healthy. I don’t look too wrinkly.
But halfway through the reception someone tapped me on the shoulder: “Your daughter’s lying on the floor in the bathroom. I think she has to go home.”
She was diagnosed with Endometriosis a couple of years ago, but that was my first experience of how suddenly and brutally Endo can take her from the party to the pits. A few weeks later she was in hospital for her second surgery in less than two years. She’s unlucky to be at stage 4 – the most severe – and she’s only 23.
Because all my symptoms have returned already, (just a couple of months after my last surgery for endo) I felt as though I needed to do something in order to feel like I have some ‘control’. It’s become clear that despite having a wonderful surgeon, I have a particularly aggressive form of Endo that grows back incredibly quickly. I’m concerned that even though my ovaries aren’t damaged now, they could be in bad condition by the time I’m ready to start having babies. I’m only 23 and as ridiculously excited as I am to have little babies of my own, I’m in no way ready. So, I asked my surgeon to refer me to a fertility specialist just so I could find out a bit more about egg freezing.