endoactive

Day 4 egg freezing

image1

This morning I had my first ultrasound (and a blood test) at Genea. Despite being an internal ultrasound, (if you’ve never had one before you pretty much lie there looking at a screen where you can see all your reproductive organs in black and white while a lovely woman gently pokes around your insides with a huge lubricated, cylindrical, dildo-looking thing that has x-ray vision. It’s pretty amazing) it was totally fine. No discomfort, no pain. And fascinating!

(more…)

Day 3 egg freezing

You will notice in the photo of my form that I have crossed out the “partner” section. In the beginning, every medical person who hadn’t bothered to read my file would always say things to me like “you and your partner” or “egg and sperm” or “IVF” or “you’ll make that decision together”… Uhh no! No husband. No partner. No sperm. No IVF. I’m 23, single and freezing my eggs on my own. Because I have Endo. And I want to empower myself and be proactive. I’m so sick of N/Aing and crossing out all the ‘partner’ sections. It’s just a bloody form but for some reason it makes me feel really lonely and isolated – like this is some sort of journey designed specifically for couples. And I’m not one. So I don’t quite fit.

(more…)

Syl chats with Julia Gillard

SylandJuliaToday, Mum and I attended a special event at the Mamamia office. (Doing our best to rep EndoActive and our cause wherever we can) The Hon. Julia Gillard came in for a Q and A session about her recently released autobiography, ‘My Story’ and to answer questions from Mamamia readers. She was interviewed by Mamamia’s Editor in Chief – Jamila Rizvi, while a select few (about 40 staff and us) got to sit very close and watch. What a privilege. She spoke so candidly and honestly about a whole range of topics; her life before, during and after being Prime Minister, gender issues, education, policies & politics, that WONDERFUL misogyny speech (which I remember watching live during Question Time while I was interning at Mamamia, on the telly with a room full of women standing, cheering and applauding – it was beyond amazing) and a whole bunch of other stuff.

(more…)

Interview with Cosmo

SylCosmo

HOLLER!! Today is a new day and it’s hard to believe I was a depressed cave woman unable to pry my white-knuckled fists from the corners of my doona for the past 2 days because today I feel fantastic! I was up bright and early, back on track with Kayla Itsine’s workout plan, hit the gym, read over my Endo fact notes, dressed up like I was Hittin’ da cleerb and at my meeting with the gorgeous Lauren from Cosmo by 11am.

(more…)

Re-training My Body & Brain

10712992_10152245228851923_8088299727495773642_n

This week I’ve begun rigorous training of strengthening myself physically, mentally & emotionally. If I have to learn to live with a chronic disease, I cannot let Endo rule my life, otherwise I’ll spend the rest of my days in bed or on the couch. I want to toughen up (by no means be a martyr) and break the cycle I’ve fallen into where I do nothing even when my pain is at a 3 or 4 out of 10. I’m trying this new thing where I add more structure to my life and force myself to do things even when I’m in pain, rather than surrendering to it and crashing on the couch all the time.

(more…)

Mamamia: Your daughter’s lying on the floor in the bathroom. I think she has to go home.

Les & Syl at a family wedding

Les & Syl at a family wedding

By LESLEY FREEDMAN

Here we are at a family wedding just a few months ago. I love this photo. My daughter looks happy and healthy. I don’t look too wrinkly.

But halfway through the reception someone tapped me on the shoulder: “Your daughter’s lying on the floor in the bathroom. I think she has to go home.”

She was diagnosed with Endometriosis a couple of years ago, but that was my first experience of how suddenly and brutally Endo can take her from the party to the pits. A few weeks later she was in hospital for her second surgery in less than two years. She’s unlucky to be at stage 4 – the most severe – and she’s only 23.

Click here to read the full post on MamamiaScreen Shot 2014-11-01 at 11.20.44 pm