Results: ‘possible low-grade changes’. This essentially means my body is still fighting HPV but that it is gradually healing. Improved results from last time where I had definite low-grade changes. Good news says my doctor. I’ll have another colposcopy in 6 – 9 months.
Had a quick trip to RPA for my 3rd colposcopy. This is something I’ve had to do a few times since the pre-cervical cancer scare I had last year.
A colposcopy is kind of like a ‘next level’ pap test. It’s the same deal with the whole scooch down the table, vagina out, feet in the stirrups, stare at the ceiling, drop your knees to the side all while trying to have the most chilled, casual conversation with your gynaecologist about life and the weather and how badly we’re doing in the Olympics while your doctor’s face is 2 inches away from your vaginal cavity.
Here I am talking about Endometriosis to a packed auditorium of hundreds of people a few weeks ago. I was in Melbourne speaking at HISA’s Health Informatics Conference as a patient advocate who has used social media to create an online community of wonderful women and raise awareness of Endometriosis.
It wasn’t long ago that I was slumped on the couch day after day in chronic pain, miserable as hell, consumed by sadness and anxiety, with no hope for the future. Becoming an activist and a patient advocate has completely turned my life around. I never ever ever would’ve imagined that the disease that was once destroying my life would now be my Ikigai – a Japanese word meaning ‘reason for being’ or reason to get up in the morning.
Taken from those wild wild storms a few months ago – yes that is FOAM not sand.
Side note: I’m eating porridge (gluten free obvs) with coconut milk, cinnamon spiced apple and smooshed banana. IT IS SO DAMN GOOD!
So the last time I wrote on here I’d just had a pre cervical cancer scare – a week after the EndoActive conference. Crikey what a come down! I really was in a glass cage of emotion. Since then I have been back to see my surgeon for a follow-up appointment on June 19 to discuss my results. As I said in my last post, my colposcopy showed pre-cancerous cells on my cervix. It was really scary at the time and I was worried. It just came as such a shock because I always expect investigative medical procedures (including both my surgeries for endo) to come back negative and for all the fuss to be for nothing. Yet they always seem to wind up quite serious! The good news about this one was that by the time my results came back, I’d already had the procedure to laser off the abnormal cells and there was nothing left to do. Despite the initial shock I can honestly say that after my follow-up appointment I’m feeling surprisingly at ease and really not at all concerned.