Fatigue and Endo is SO misunderstood! Finally – a published paper on this topic.
Finally – a paper on fatigue and endo! Even though I’m 99.99% pain-free these days, fatigue is a symptom (which I believe is endo-related) that still plagues me.
Yesterday I absolutely could not wake up.
I slept in til 1pm, then had a productive 4 hours of work.
By 6pm I could hardly keep my eyes open and no longer had the energy to communicate. Even eating dinner was a struggle because I just felt so drained.
8pm I was back in bed.
Today I feel great! Lots of energy, focus, motivation and mental clarity. No brain fog. No pining for my bed and for sleep.
The random INSANE fatigue is something I’ve learned to live with. If I’m so tired that I can’t wake up and can’t see straight, I sleep because I know my body needs it and I will not be able to function. Being a uni student, this is a luxury afforded to me.
I try not to feel guilty as I know the fatigue is out of my control. I eat well, I go to bed early, I usually don’t drink alcohol more than 1 or 2 nights a week. My major fatigue days are not caused by partying or staying up late or taking sedatives or low mood… they just happen.
There are still people in my life who simply cannot comprehend that I can be ‘healthy’ and pain-free but still have days where I can’t wake up – seemingly for no reason.
This isn’t laziness.
Sleeping in til late afternoon is not a lifestyle choice for me and I’m sure it isn’t for you.
But it is a part of endo that I believe ist poorly understood and impossible for those who haven’t experiences that type of fatigue, to understand.
Does random crazy fatigue happen to you?
Syl xx
Full article below
August 7, 2018 @ 1:28 am
Hi Syl,
I have just subscribed to your blog, I am so happy to have found you! I have just had surgery for severe endo after years of chronic fatigue and pain and been labelled as having stress and fibromyalgia as there was no other explanation as it seemed. So it took 10 years for them to diagnose this disease and considering the hundreds of appointments I have had over the years and thousands spent on seeing specialists, it so bizarre that none of them suggested endo – similar story to yourself it seems. I am just glad that that after all this time I have found an amazing surgeon and now all of my previous suffering makes sense.