I’m holding Australia’s (maybe the world’s?) first ever National Action Plan for Endometriosis 😆😆 just launched by Greg Hunt MP .
A few months ago I was sitting at the Roundtable Meeting in Melbourne with 40 other experts in the field of endo, sharing all your stories, your wants, your needs, what WOMEN AND GIRLS WITH ENDO want and need, and all my ideas for solutions to the enormous public health issue that is #endometriosis.
Finally – a paper on fatigue and endo! Even though I’m 99.99% pain-free these days, fatigue is a symptom (which I believe is endo-related) that still plagues me.
Yesterday I absolutely could not wake up.
I slept in til 1pm, then had a productive 4 hours of work.
By 6pm I could hardly keep my eyes open and no longer had the energy to communicate. Even eating dinner was a struggle because I just felt so drained.
8pm I was back in bed.
THIS POST IS REPUBLISHED FROM MARCH 2015
It was just your average Friday night. I ventured out to a pub in Chippendale to have a coupla with me mates after a mental week at EndoActive HQ. It was there that I wound up talking to a bunch of dudes about periods. Oh yes.
HOLY GUACAMOLE 
🥑 !!! What an INCREDIBLE day!!!!. For 8 hours we (EndoActive and our newly formed peak body, the Australian Coalition for Endometriosis (ACE) ) have worked with 30 of Australia’s best experts in Endometriosis to craft the National Action Plan for Endo.
Minister Greg Hunt was there and gave another brilliant speech. He asked me not to repeat this bit but when he spoke to his wife about bringing attention to endo, she said, “ABOUT BLOODY TIME!” 
👏🏼👏🏼👏🏼
Did my first live interview with ABC News last night on endometriosis. Didn’t plan on wearing my hi-vis jacket but they said my top was see-through so… Here’s my interview moments before lobbying the government and giving my speech to Minister for Health, Greg Hunt MP
EXCITING NEWS! EndoActive has been accepted to present some of our work at the World Congress on Endometriosis in Vancouver!
This is another HUGE milestone for us. Time for a little story…
(more…)
All the photos from EndoActive’s Party for a Cause at Neighbourhood Bondi on March 18 to celebrate Endometriosis Awareness Month and raise funds much-needed for EndoActive. We had so much fun!! Syl xx
Although this article in Latte was from July 2015 – it was a great awareness piece on endometriosis. A huge thanks to Business Chicks for featuring EndoActive and providing important health information about endo.
Click through to read the full article.
EndoActive’s Co-founder, Syl Freedman has been named as one of 8 Young Leaders in the 100 Women of Influence Awards, sponsored by the Australian Financial Review and Westpac. The awards are designed to increase the visibility of women’s leadership and highlight the important contribution women make in creating a bold and diverse future for Australia.
This morning I am FURIOUS!! Absolutely disgusted with Dr Michael Gannon – President of the AMA – for his callous, disgraceful disregard for women who suspect their unborn baby is in trouble.
Perpetuating the dangerous myth, unsupported by science,that having a cold drink will “wake the baby up” is like saying “getting pregnant will cure endometriosis” and all of us should take a stand and call him out. You can email him with your thoughts: president@ama.com.au.